Professional Directory / Executive Director

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Desiree Lyon

Desiree Lyon Howe is the co-founder of the American Porphyria Foundation and has also served as the Executive Director of the foundation for twenty-five years. Desiree Lyon Howe lived for 10 years in excruciating pain before being diagnosed with Acute Intermittent Porphyria (AIP). She was finally diagnosed at the National Institutes of Health where¬† …… View More

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